What would you do if your adult children developed an age-defying disease that made them regress to childhood in front of your eyes? How would you cope with seeing them go from man to boy and looking after them 24 hours a day?
This documentary tells the story of Tony and Christine Clark and their two sons Matthew, 39 and Michael, 42, as they live and cope with this dreadful condition; not once, but twice.
Michael and Matthew Clark from Hull had lived normal lives until their late thirties. They were totally unaware their brains were carrying a deadly neurological time bomb: a rare and little known condition called Leukodystrophy.
The condition causes a progressive loss of every neurological function - speech, memory, movement, sight, hearing, touch, eating, swallowing - and normally affects children.
This film follows the Clark family on their fascinating and traumatic journey as they struggle with their day-to-day life, trying to come to terms with watching their grown-up sons become young boys trapped in adult bodies.... Read more.