Hayley Okines is one of the most recognisable faces of Progeria, an incredibly rare condition that causes signs of old age in children. Occurring just once in eight million people, the genetic mutation physically ages a sufferer’s body eight times faster than normal. For nearly a decade Hayley’s story has been documented following her triumphs against a truly terrifying condition.
This fascinating observational documentary shows Hayley at a significant period of her life as she begins secondary school – a landmark that her parents never thought they would see.
Hayley and her devoted parents continue to stay hopeful that new developments in research and drug trials in the USA could significantly affect her time at school and change the path of Progeria forever. Hayley’s brave and positive attitude is unfaltering and makes this inspiring story unforgettable.... Read more.